Writing this initial post has been an agonizing endeavor. My struggle was rooted in my pursuit of perfection, particularly because this topic — Chronic Invisible Illness — and this project — Chronic Visibility — is so very important. There are so many things that must be said. Quite honestly, once I mustered up the courage to share my experiences of living with a chronic invisible illness, new concerns began to emerge…Should I use a scholarly tone? Will I be able to reach those who really need this information? Does anybody really care?
Negative thoughts are designed to distract us. As an educator, I know that no exercise we commit ourselves to is ever a waste of time. We learn from each and every thing we experience. I have learned a lot from my illnesses, and although Chronic Visibility is a work in progress, I cannot allow the lack of perfection prevent me from sharing what I have learned with others. And so, I move forward with this work in progress, with the hope that many will benefit from it. After all, we are all works in progress.
Exactly what is this work--Chronic Visibility? Primarily, Chronic Visibility is a web series designed to give those who suffer with chronic invisible illnesses a voice. We also aim to bring awareness to our unique struggles, and to:
And so, with that, I present the pilot episode of Chronic Visibility.
Joanna
Negative thoughts are designed to distract us. As an educator, I know that no exercise we commit ourselves to is ever a waste of time. We learn from each and every thing we experience. I have learned a lot from my illnesses, and although Chronic Visibility is a work in progress, I cannot allow the lack of perfection prevent me from sharing what I have learned with others. And so, I move forward with this work in progress, with the hope that many will benefit from it. After all, we are all works in progress.
Exactly what is this work--Chronic Visibility? Primarily, Chronic Visibility is a web series designed to give those who suffer with chronic invisible illnesses a voice. We also aim to bring awareness to our unique struggles, and to:
- Provide information and inspiration to those who may be suffering, often in silence, and are unsure what is going on
- Provide a forum for expression and an exchange of ideas
- Encourage viewers and readers to fight through the pain, fatigue and frustration that they experience living life with a chronic invisible disease.
And so, with that, I present the pilot episode of Chronic Visibility.
Joanna